European Patients Forum

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Title DOI
https://doi.org/10.3389/fmed.2018.00230 EUPATI and Patients in Medicines Research and Development: Guidance for Patient Involvement in Regulatory Processes
https://doi.org/10.3389/fmed.2018.00270 EUPATI Guidance for Patient Involvement in Medicines Research and Development (R&D); Guidance for Pharmaceutical Industry-Led Medicines R&D
https://doi.org/10.1136/bmjopen-2019-034680 Comparing the effectiveness and cost-effectiveness of self-management interventions in four high-priority chronic conditions in Europe (COMPAR-EU): a research protocol
https://doi.org/10.12688/f1000research.22125.1 The perspectives of patients and their caregivers on self-management interventions for chronic conditions: a protocol for a mixed-methods overview
https://doi.org/10.1136/bmj-2024-082697 Evolution of reported patient and public involvement over time in randomised controlled trials in major medical journals and in their protocols: meta-epidemiological evaluation
https://doi.org/10.3389/fmed.2018.00251 EUPATI and Patients in Medicines Research and Development: Guidance for Patient Involvement in Ethical Review of Clinical Trials
https://doi.org/10.1016/s0140-6736(16)00285-3 Health-care improvements in a financially constrained environment
https://doi.org/10.3233/jnd-200611 Improving Care and Empowering Adults Living with SMA: A Call to Action in the New Treatment Era
https://doi.org/10.1111/dme.15259 Standardising personalised diabetes care across European health settings: A person‐centred outcome set agreed in a multinational Delphi study
https://doi.org/10.1002/cpt.1121 Medicines Adaptive Pathways to Patients: Why, When, and How to Engage?
https://doi.org/10.1016/j.hlpt.2024.100930 Evaluating progress towards implementation of the European HTA Regulation: Insights generated from the European Access Academy's multi-stakeholder survey
https://doi.org/10.1159/000446532 Enabling Equal Access to Molecular Diagnostics: What Are the Implications for Policy and Health Technology Assessment?
https://doi.org/10.1097/jac.0b013e3181e5eb7b Assessing the Involvement of the Patient Community in European Commission Co-Funded Health Projects
Ciudadanía sanitaria europea. Realidades, expectativas y oportunidades para los pacientes en la Unión Europea
https://doi.org/10.2139/ssrn.5239888 Conformity Between Values and EU Legal Requirements Regarding an AI Clinical Decision Support System (AI-CDSS) for Improved Cardiovascular Risk Management (DECIDE)
https://doi.org/10.2139/ssrn.4154104 Development of an Updated, Standardized, Patient-Centered Outcome Set for Lung Cancer
https://doi.org/10.1594/esi2017/esi-0029 EPF Universal Health Coverage - Access Campaign 2017
https://doi.org/10.1007/978-3-319-33703-6_63 Patient Resources in Inflammatory Bowel Disease
https://doi.org/10.1055/s-0044-1794298 Empowering Patients in Health Technology Assessment: The European Capacity Building for Patients (EUCAPA) Initiative
https://doi.org/10.1016/j.jval.2024.10.3543 PCR301 The EUCAPA Project: A Concept for Patient Engagement and Capacity Building for the New Health Technology Assessment Regulation
https://doi.org/10.1016/j.jval.2024.10.1923 HTA98 Patient Consensus on PICO Scoping for the Health Technology Assessment (HTA) Regulation: A Case for Delphi Methodology
https://doi.org/10.2139/ssrn.5202088 Is My LLM Application Considered a Medical Device under the MDR?
https://doi.org/10.1093/eurjcn/zvaf193 Global Heart Hub report: ‘unite for change in transforming cardiovascular care for people living with multiple conditions’
https://doi.org/10.1093/ijcoms/lyaf010 More than just a voice: how the OECD’s Patient-Reported Indicator Surveys (PaRIS) Patient Advisory Panel drives action and results
https://doi.org/10.1002/bcp.70330 European Medicines Agency seeks stakeholders' views on its reflection paper on patient experience data
https://doi.org/10.1093/eurpub/ckaf165.072 PL004. Reimagining Resilient Health Systems: Integrating Risk, Intelligence, and One Health for Safety
https://doi.org/10.1016/j.jval.2025.12.004 Toward a Harmonized Health Technology Assessment Framework for Digital Health Technologies in Europe
https://doi.org/10.3390/jmahp14010006 Enhancing Patient-Centered Health Technology Assessment: A Modified Delphi Panel for PICOS Scoping in Spinal Muscular Atrophy
https://doi.org/10.1007/978-3-032-11284-2_18 European Union: Patient Involvement Model in HTA Under the European HTA Regulation
https://doi.org/10.1007/978-3-032-11284-2_30 The Evolving Role of Patient Organisations in HTA