European Federation of Allergy and Airways Diseases Patients Associations

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Title DOI
https://doi.org/10.1111/j.1398-9995.2007.01620.x Allergic Rhinitis and its Impact on Asthma (ARIA) 2008*
https://doi.org/10.1097/hep.0000000000000520 A multisociety Delphi consensus statement on new fatty liver disease nomenclature
https://doi.org/10.1016/j.jhep.2023.06.003 A multisociety Delphi consensus statement on new fatty liver disease nomenclature
https://doi.org/10.1111/jdv.14891 Consensus‐based European guidelines for treatment of atopic eczema (atopic dermatitis) in adults and children: part I
https://doi.org/10.1016/j.aohep.2023.101133 A multisociety Delphi consensus statement on new fatty liver disease nomenclature
https://doi.org/10.1111/jdv.14888 Consensus‐based European guidelines for treatment of atopic eczema (atopic dermatitis) in adults and children: part II
https://doi.org/10.1186/1471-2466-6-13 Attitudes and actions of asthma patients on regular maintenance therapy: the INSPIRE study
https://doi.org/10.1111/jvh.12248 The present and future disease burden of hepatitis C virus (HCV) infection with today's treatment paradigm
https://doi.org/10.1136/ard.2007.072157 EULAR evidence-based recommendations on the management of systemic glucocorticoid therapy in rheumatic diseases
https://doi.org/10.1111/jdv.18345 European guideline (EuroGuiDerm) on atopic eczema: part I – systemic therapy
https://doi.org/10.1111/all.13208 Allergen immunotherapy for allergic asthma: A systematic review and meta‐analysis
https://doi.org/10.1016/j.healthpol.2017.09.006 Multimorbidity care model: Recommendations from the consensus meeting of the Joint Action on Chronic Diseases and Promoting Healthy Ageing across the Life Cycle (JA-CHRODIS)
https://doi.org/10.1186/s13073-016-0323-y Making sense of big data in health research: Towards an EU action plan
https://doi.org/10.1111/all.13749 EAACI Guidelines on Allergen Immunotherapy: House dust mite‐driven allergic asthma
https://doi.org/10.1111/all.14425 EAACI Biologicals Guidelines—Recommendations for severe asthma
https://doi.org/10.1186/gm259 Systems medicine and integrated care to combat chronic noncommunicable diseases
https://doi.org/10.1111/jdv.18429 European guideline (EuroGuiDerm) on atopic eczema – part II: non‐systemic treatments and treatment recommendations for special AE patient populations
https://doi.org/10.1111/jvh.12247 Historical epidemiology of hepatitis C virus (HCV) in selected countries
https://doi.org/10.1111/j.1365-2893.2011.01499.x The state of hepatitis B and C in Europe: report from the hepatitis B and C summit conference*
https://doi.org/10.1111/all.15902 EAACI guidelines on the diagnosis of IgE‐mediated food allergy
https://doi.org/10.1111/j.1398-9995.2007.01425.x The prevalence, cost and basis of food allergy across Europe
https://doi.org/10.1186/2045-7022-2-21 Research needs in allergy: an EAACI position paper, in collaboration with EFA
https://doi.org/10.1016/j.jaci.2016.12.940 Mechanisms of the Development of Allergy (MeDALL): Introducing novel concepts in allergy phenotypes
https://doi.org/10.1111/all.12686 MACVIA-ARIA Sentinel NetworK for allergic rhinitis (MASK-rhinitis): the new generation guideline implementation
https://doi.org/10.1136/ard.2009.124958 Monitoring adverse events of low-dose glucocorticoid therapy: EULAR recommendations for clinical trials and daily practice
https://doi.org/10.1016/s2468-1253(20)30294-6 Redefining fatty liver disease: an international patient perspective
https://doi.org/10.1111/jvh.12249 Strategies to manage hepatitisCvirus (HCV) disease burden
https://doi.org/10.1111/j.1398-9995.2010.02534.x MeDALL (Mechanisms of the Development of ALLergy): an integrated approach from phenotypes to systems medicine
https://doi.org/10.1111/hex.12951 Evaluating the “return on patient engagement initiatives” in medicines research and development: A literature review
https://doi.org/10.1016/j.jaci.2016.03.025 MACVIA clinical decision algorithm in adolescents and adults with allergic rhinitis
https://doi.org/10.1016/j.buildenv.2015.08.011 What does the scientific literature tell us about the ventilation–health relationship in public and residential buildings?
https://doi.org/10.1186/s13601-016-0137-4 ARIA 2016: Care pathways implementing emerging technologies for predictive medicine in rhinitis and asthma across the life cycle
https://doi.org/10.1016/j.jaci.2018.08.049 Allergic Rhinitis and its Impact on Asthma (ARIA) Phase 4 (2018): Change management in allergic rhinitis and asthma multimorbidity using mobile technology
https://doi.org/10.1111/jdv.15634 Atopic eczema: burden of disease and individual suffering – results from a large EU study in adults
https://doi.org/10.1097/aci.0b013e3282f3f42f The voice of the patients: allergic rhinitis is not a trivial disease
https://doi.org/10.1183/16000617.00008114 National and regional asthma programmes in Europe
https://doi.org/10.1186/s13601-018-0227-6 MASK 2017: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma multimorbidity using real-world-evidence
https://doi.org/10.1186/s13601-019-0252-0 Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma
https://doi.org/10.1111/all.14809 Efficacy and safety of treatment with biologicals for severe chronic rhinosinusitis with nasal polyps: A systematic review for the EAACI guidelines
https://doi.org/10.1111/all.12637 Are allergic multimorbidities and IgE polysensitization associated with the persistence or re‐occurrence of foetal type 2 signalling? The MeDALL hypothesis
https://doi.org/10.1183/09031936.00053108 The Brussels Declaration: the need for change in asthma management
https://doi.org/10.1159/000509057 Asthma and the Coronavirus Disease 2019 Pandemic: A Literature Review
https://doi.org/10.1111/j.1398-9995.2010.02439.x Development and implementation of guidelines in allergic rhinitis – an ARIA‐GA2LEN paper
https://doi.org/10.2340/00015555-3102 Out-of-pocket Costs for Individuals with Atopic Eczema: A Cross-sectional Study in Nine European Countries
https://doi.org/10.1111/all.12880 Paving the way of systems biology and precision medicine in allergic diseases: the Me DALL success story
https://doi.org/10.1007/s12072-018-9855-0 Therapeutic recommendations in HFE hemochromatosis for p.Cys282Tyr (C282Y/C282Y) homozygous genotype
https://doi.org/10.1093/ndt/gfac160 The European Green Deal and nephrology: a call for action by the European Kidney Health Alliance
https://doi.org/10.1016/j.jaci.2012.01.047 Understanding the complexity of IgE-related phenotypes from childhood to young adulthood: A Mechanisms of the Development of Allergy (MeDALL) Seminar
https://doi.org/10.1186/s13601-017-0186-3 European Summit on the Prevention and Self-Management of Chronic Respiratory Diseases: report of the European Union Parliament Summit (29 March 2017)
https://doi.org/10.4193/rhin17.253 mySinusitisCoach: patient empowerment in chronic rhinosinusitis using mobile technology
https://doi.org/10.1111/jvh.12120 The State of Hepatitis B and C in the Mediterranean and Balkan Countries: Report from a Summit Conference
https://doi.org/10.1111/all.14408 Real‐life assessment of chronic rhinosinusitis patients using mobile technology: The mySinusitisCoach project by EUFOREA
https://doi.org/10.1111/all.13701 ARIA pharmacy 2018 “Allergic rhinitis care pathways for community pharmacy”
https://doi.org/10.3389/fmed.2018.00231 EUPATI Guidance for Patient Involvement in Medicines Research and Development: Health Technology Assessment
https://doi.org/10.1111/all.14422 ARIA digital anamorphosis: Digital transformation of health and care in airway diseases from research to practice
https://doi.org/10.1186/s12954-018-0230-1 Harm reduction and viral hepatitis C in European prisons: a cross-sectional survey of 25 countries
https://doi.org/10.2174/1381612820666140314115505 Systems Medicine Approaches for the Definition of Complex Phenotypes in Chronic Diseases and Ageing. From Concept to Implementation and Policies
https://doi.org/10.1007/s40290-022-00458-4 Using Patient Perspectives to Inform Better Clinical Trial Design and Conduct: Current Trends and Future Directions
https://doi.org/10.1186/s13601-016-0116-9 Scaling up strategies of the chronic respiratory disease programme of the European Innovation Partnership on Active and Healthy Ageing (Action Plan B3: Area 5)
https://doi.org/10.4193/rhin17.028 EUFOREA Rhinology Research Forum 2016: report of the brainstorming sessions on needs and priorities in rhinitis and rhinosinusitis
https://doi.org/10.1111/all.12819 European Symposium on Precision Medicine in Allergy and Airways Diseases: Report of the European Union Parliament Symposium (October 14, 2015)
https://doi.org/10.1111/all.15275 Behavioural patterns in allergic rhinitis medication in Europe: A study using MASK‐air® real‐world data
https://doi.org/10.1007/s40271-021-00514-2 The Perspectives of Patients with Chronic Diseases and Their Caregivers on Self-Management Interventions: A Scoping Review of Reviews
https://doi.org/10.1136/bmjgh-2023-013150 Traditional, complementary and integrative healthcare: global stakeholder perspective on WHO’s current and future strategy
https://doi.org/10.1111/hex.12997 Including the patient voice in the development and implementation of patient‐reported outcomes in cancer clinical trials
https://doi.org/10.1183/13993003.00606-2022 Development of Core Outcome Measures sets for paediatric and adult Severe Asthma (COMSA)
https://doi.org/10.1016/s1470-2045(23)00157-2 Setting International Standards in Analyzing Patient-Reported Outcomes and Quality of Life Endpoints in Cancer Clinical Trials-Innovative Medicines Initiative (SISAQOL-IMI): stakeholder views, objectives, and procedures
https://doi.org/10.1136/bmjopen-2019-034680 Comparing the effectiveness and cost-effectiveness of self-management interventions in four high-priority chronic conditions in Europe (COMPAR-EU): a research protocol
https://doi.org/10.1111/hex.13191 Evaluation of patient engagement in medicine development: A multi‐stakeholder framework with metrics
https://doi.org/10.1007/s43441-021-00282-z Sustaining Meaningful Patient Engagement Across the Lifecycle of Medicines: A Roadmap for Action
https://doi.org/10.1016/j.jhepr.2022.100578 What to do about hepatocellular carcinoma: Recommendations for health authorities from the International Liver Cancer Association
https://doi.org/10.1186/s13601-017-0173-8 CHRODIS criteria applied to the MASK (MACVIA-ARIA Sentinel NetworK) Good Practice in allergic rhinitis: a SUNFRAIL report
https://doi.org/10.1016/s2352-3026(22)00226-5 Access to and affordability of CAR T-cell therapy in multiple myeloma: an EBMT position paper
https://doi.org/10.1016/j.jhep.2023.12.031 Inequities in primary liver cancer in Europe: The state of play
https://doi.org/10.1007/s12072-024-10732-z APASL clinical practice guidelines on systemic therapy for hepatocellular carcinoma-2024
https://doi.org/10.1158/2643-3230.bcd-21-0205 Perspectives on the Risk-Stratified Treatment of Multiple Myeloma
https://doi.org/10.1371/journal.pone.0265153 Stigmatization is common in patients with non-alcoholic fatty liver disease and correlates with quality of life
https://doi.org/10.1016/j.jhep.2020.08.009 Endpoints and design of clinical trials in patients with decompensated cirrhosis: Position paper of the LiverHope Consortium
https://doi.org/10.1093/ecco-jcc/jjac135 Paediatric Inflammatory Bowel Disease: A Multi-Stakeholder Perspective to Improve Development of Drugs for Children and Adolescents
https://doi.org/10.1111/jdv.20639 European Guideline (EuroGuiDerm) on atopic eczema: Living update
https://doi.org/10.1017/s0266462322000198 Designing and Implementing Deliberative Processes for Health Technology Assessment: A Good Practices Report of a Joint HTAi/ISPOR Task Force
https://doi.org/10.1183/23120541.00444-2022 Definitions of non-response and response to biological therapy for severe asthma: a systematic review
https://doi.org/10.1136/bmj-2022-071913 The European Health Data Space fails to bridge digital divides
https://doi.org/10.1016/j.jaip.2024.06.040 Concepts for the Development of Person-Centered, Digitally Enabled, Artificial Intelligence–Assisted ARIA Care Pathways (ARIA 2024)
https://doi.org/10.1016/j.jhep.2023.01.008 Post-liver transplantation patient experience
https://doi.org/10.12688/f1000research.22125.1 The perspectives of patients and their caregivers on self-management interventions for chronic conditions: a protocol for a mixed-methods overview
https://doi.org/10.1111/pai.14129 Recommendations for asthma monitoring in children: A PeARL document endorsed by APAPARI, EAACI, INTERASMA, REG, and WAO
https://doi.org/10.2147/tcrm.s489873 Adoption of Digital Therapeutics in Europe
https://doi.org/10.1016/s1470-2045(25)00150-0 Using patient-reported outcomes and health-related quality of life data in regulatory decisions on cancer treatment: highlights from an EMA-EORTC workshop
https://doi.org/10.1183/13993003.00691-2024 Patient-centred composite scores as tools for assessment of response to biological therapy for paediatric and adult severe asthma
https://doi.org/10.1093/sleep/zsae164 Preventive medicine in obstructive sleep apnea—a systematic review and a call to action
https://doi.org/10.1017/s0266462321000167 Development of an international template to support patient submissions in Health Technology Assessments
https://doi.org/10.36416/1806-3756/e20220270 Environmental impact of inhaler devices on respiratory care: a narrative review
https://doi.org/10.1017/s0266462324004707 Stakeholder perspectives on the current status and potential barriers of patient involvement in health technology assessment (HTA) across Europe
https://doi.org/10.1038/s41591-025-03759-8 The People-First Liver Charter
https://doi.org/10.1002/clt2.70013 Towards a common approach for managing food allergy and serious allergic reactions (anaphylaxis) at school. GA2LEN and EFA consensus statement
https://doi.org/10.1055/s-0044-1782527 Role of Nasal Surgery in Adult Obstructive Sleep Apnea: A Systematic Review
https://doi.org/10.1016/s1470-2045(25)00520-0 SISAQOL-IMI consensus-based guidelines to design, analyse, interpret, and present patient-reported outcomes in cancer clinical trials
https://doi.org/10.1007/s12325-025-03191-x Improving Care for People with Chronic Respiratory Diseases: Taking a Policy Lens
https://doi.org/10.1016/j.lanepe.2025.101408 Disparities in access to systemic therapies for patients with hepatocellular carcinoma: an analysis from the International Liver Cancer Association