Publications in OpenAlex of which a co-author is affiliated to this organization
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| Title | DOI |
|---|---|
| https://doi.org/10.1097/01.hs9.0000977392.89675.82 | PB2679: MIXED-METHOD, CROSS-SECTIONAL SURVEY TO DESCRIBE FEELINGS, PERCEPTION, AND EXPERIENCE OF MULTIPLE MYELOMA PATIENTS WHO SWITCHED FROM INTRAVENOUS DARATUMUMAB TO THE SUBCUTANEOUS FORMULATION IN EUROPE |
| https://doi.org/10.21203/rs.3.rs-3379154/v1 | Accelerated elastin degradation by age-disease interaction: a common feature in age-related diseases |
| https://doi.org/10.1183/13993003.congress-2023.oa1527 | Patient-centred composite index for assessment of response to biological therapy for adult severe asthma. |
| https://doi.org/10.1182/blood-2023-174207 | Cytokine Release Syndrome: The Patient, Caregiver and Healthcare Professional Experience |
| https://doi.org/10.1016/j.jval.2023.09.2566 | PCR127 Needs and Experiences of Patients and Healthcare Professionals Towards Shared Decision Making in Multiple Myeloma Clinical Practice: A Qualitative Study in Europe |
| https://doi.org/10.1016/j.jval.2023.09.2678 | PCR241 The Experience of Patients Living with Multiple Myeloma: Unmet Needs Associated with Diagnosis, Treatment, and Living with the Condition |
| https://doi.org/10.1016/j.jval.2023.09.241 | CO169 Pan-Stakeholder Core Outcome Set (COS) Definition for Hematological Malignancies in the Framework of the EU Project, Harmony: the Healthcare Alliance for Resourceful Medicine Offensive Against Neoplasms in Hematology |
| https://doi.org/10.1101/2024.05.20.24307621 | Polygenic and transcriptional risk scores identify chronic obstructive pulmonary disease subtypes |
| https://doi.org/10.1002/ueg2.12607 | Advancing patient‐centered care: Recent developments in UEG's patient relations |
| https://doi.org/10.1136/bmjebm-2024-sdc.279 | 280 Involvement of multiple myeloma patients in decisions on treatment and care: an online survey |
| https://doi.org/10.1136/bmjebm-2024-sdc.238 | 239 The undervalued role of nurses in shared decision making: insights from interviews across disease areas in Belgium |
| https://doi.org/10.1080/23995270.2024.2395802 | Launch of the myeloma and AL amyloidosis European clinical trial navigator by Myeloma Patients Europe: interview with Dr Solène Clavreul |
| https://doi.org/10.1183/13993003.congress-2024.pa1327 | Developing a quality of life outcome measure for paediatric severe asthma: a field-testing survey |
| https://doi.org/10.1183/13993003.congress-2024.pa4331 | How patients act in response to COPD exacerbations: results from a multi-country survey |
| https://doi.org/10.1183/13993003.congress-2024.pa1171 | Towards disease stability in COPD management: patient perspectives |
| https://doi.org/10.1183/13993003.congress-2024.pa731 | Multi-morbidity in Type 2 Disease: A Patient and Providers Survey |
| https://doi.org/10.1182/blood-2024-208007 | Examining Discrepancies in Perspectives of Healthcare Providers and Patients with Relapsed/Refractory Multiple Myeloma on Novel Therapies across Diverse Clinical Landscapes: An International Prospective Study |
| https://doi.org/10.1182/blood-2024-201802 | The Impact of Multiple Myeloma on Care Partner Well-Being, Work Productivity, and Resource Use in the United States and Western Europe |
| https://doi.org/10.1182/blood-2024-205091 | Overcoming Barriers to Novel Combination Therapy in Multiple Myeloma (MM): Oncocollective Insights into Improving Patient Outcomes in Europe |
| https://doi.org/10.1016/j.jval.2024.10.023 | P18 Understanding the Challenges Around Implementing PROMs for Patients Receiving Novel Immunotherapies in Hematology |
| https://doi.org/10.1016/j.jval.2024.10.3543 | PCR301 The EUCAPA Project: A Concept for Patient Engagement and Capacity Building for the New Health Technology Assessment Regulation |
| https://doi.org/10.1016/j.jval.2024.10.3405 | PCR162 Evidence-Based Recommendations on the Implementation of Shared Decision Making in Multiple Myeloma |
| https://doi.org/10.1016/j.jval.2024.10.1675 | HPR251 Cost-Effectiveness Thresholds in Healthcare Decision-Making: A Scoping Review of Methods, Interpretations, and Implications Across Countries |
| https://doi.org/10.1016/j.jval.2024.10.1923 | HTA98 Patient Consensus on PICO Scoping for the Health Technology Assessment (HTA) Regulation: A Case for Delphi Methodology |
| https://doi.org/10.1016/j.jval.2024.10.1661 | HPR237 Price Determinants and Pricing Policies Concerning Potentially Innovative Health Technologies: A Scoping Review |
| https://doi.org/10.1016/j.rmra.2024.11.200 | Vers la stabilité de la maladie dans la prise en charge de la BPCO : le point de vue des patients |
| https://doi.org/10.1016/j.jaci.2024.12.334 | Performance Of Asthma Control Assessments in Detecting Impairment And Risk In Demographically Diverse Children Aged 5-11 Years |
| https://doi.org/10.1016/j.jaci.2024.12.229 | Results Of An International Survey In Adults With CRSwNP: Surgery Or Biologics? |
| https://doi.org/10.1016/j.resuscitation.2025.110571 | From first aid to BLS certification: Addressing the distinction in training standards |
| https://doi.org/10.2147/ppa.s496106 | Perspectives of Healthcare Providers and Patients with Relapsed/Refractory Multiple Myeloma on Treatment Priorities and Novel Therapies |
| https://doi.org/10.1038/s41598-025-95009-7 | Author Correction: The preferences of people with amyotrophic lateral sclerosis on riluzole treatment in Europe |
| https://doi.org/10.1016/j.jval.2025.08.008 | Patient-Reported Outcomes Now and Into the Future: Multistakeholder Perspectives on Optimizing the Use of Patient-Reported Outcome Evidence in Decision Making Across the US Healthcare Continuum |
| https://doi.org/10.1002/ueg2.70104 | Transition From Youth to Adulthood: UEG 2024 Roundtable on Navigating Chronic Digestive and Liver Disease Care |
| https://doi.org/10.1371/journal.pone.0330288 | Protocol for a core outcome set for pharmacological treatments in hospitalised patients with acute viral respiratory infections (COSAVRI) |
| https://doi.org/10.1302/1358-992x.2025.7.079 | THE PATIENT PERSPECTIVE: INVOLVEMENT OF PATIENTS IN TRANSLATIONAL RESEARCH AND CLINICAL INVESTIGATIONS |
| https://doi.org/10.1182/bloodadvances.2025017081 | Patient-reported outcomes in patients with hematologic malignancies treated with CAR T-cell therapy in Europe |
| https://doi.org/10.1093/eurjcn/zvaf193 | Global Heart Hub report: ‘unite for change in transforming cardiovascular care for people living with multiple conditions’ |
| https://doi.org/10.1093/neuonc/noaf193.554 | P17.38.B THE USE OF EORTC QLQ-C30 SUMMARY SCORE IN CANCER CLINICAL TRIALS AND ITS PERFORMANCE AS COMPARED WITH THE GLOBAL HEALTH / QUALITY OF LIFE SCALE: A COMPARATIVE ANALYSIS OF EFFECT SIZES |
| https://doi.org/10.1007/s12325-025-03346-w | The Global Patient Perspective on Uncontrolled Moderate-to-Severe Asthma: Reducing Delays in Diagnosis and Treatment |
| https://doi.org/10.1080/14796694.2025.2557174 | A plain language summary of LocoMMotion – an observational study of treatments used for pretreated multiple myeloma |
| https://doi.org/10.1016/j.anai.2025.09.025 | Urgent need for collaboration in the allergy workforce for infants and toddlers |
| https://doi.org/10.3389/fphar.2025.1558556 | Methodological study protocol for The European Atlas of clinical trials in cancer and haematology |
| https://doi.org/10.1186/s12889-025-24925-0 | Personalised prevention: what patients and citizen advocates want for better engagement – a qualitative study |
| https://doi.org/10.1002/bcp.70330 | European Medicines Agency seeks stakeholders' views on its reflection paper on patient experience data |
| https://doi.org/10.1016/j.annonc.2025.08.2925 | 2309P European atlas on clinical trials in cancer and haematology (EuroACT): Mapping research and equity across Europe |
| https://doi.org/10.1016/j.fander.2025.09.608 | Habitudes de prescription et objectifs thérapeutiques des dermatologues et des allergologues dans la prise en charge de l’urticaire chronique spontanée : étude « Urticaria Voices » |
| https://doi.org/10.2147/copd.s527932 | Addressing the Most Critical Challenges in COPD: An Expert Review of Emotional, Economic, and Evidence-Based Perspectives |
| https://doi.org/10.3389/fphar.2025.1743351 | Correction: Methodological study protocol for the European Atlas of clinical trials in cancer and haematology |
| https://doi.org/10.1183/13993003.congress-2025.pa2507 | Patient-centred approaches to adult asthma care: a European modified Delphi consensus programme |
| https://doi.org/10.1183/13993003.congress-2025.pa6003 | An insight into the mental health and quality of life of people living with chronic lung conditions |
| https://doi.org/10.1183/13993003.congress-2025.rct1116 | Late Breaking Abstract - Randomised, placebo-controlled trial of astegolimab for COPD with frequent exacerbations: ALIENTO |
| https://doi.org/10.1016/j.esmorw.2025.100602 | 406P Symmetrian: A rule-based matchmaking platform to enhance patient-centric cancer research |
| https://doi.org/10.1080/10408398.2025.2593577 | Furan and alkylfurans in food: recent scientific developments, new occurrence data across product categories and practical risk management measures |
| https://doi.org/10.2215/cjn.0000000957 | Blood Pressure Beyond the Dialysis Chair |
| https://doi.org/10.1016/j.jval.2025.09.2510 | PCR37 Capturing the Realities of Hematological Cancer Patients’ Experiences of Novel Immunotherapies: A Call for Alignment and Action to Improve PROM Within CAR-T and Bispecific Antibody Therapies |
| https://doi.org/10.1016/j.jval.2025.09.2608 | PCR135 Improving Patient Involvement in Cancer Clinical Trials: Development of Plain Language Checklists Within the SISAQOL-IMI Initiative |
| https://doi.org/10.1016/j.jval.2025.09.2051 | HTA268 Patient-Centered PICO Scoping in EU HTA: A Pilot Study for Structured Consensus Building Using a Delphi Panel |
| https://doi.org/10.1016/j.jval.2025.09.2859 | RWD109 Integrating Mendelian Randomization With Real-World Evidence: Cost-Effectiveness of Lipoprotein Testing for Primary Prevention of Cardiovascular Disease in High-Income Countries |
| https://doi.org/10.1038/s41533-025-00465-3 | A guide for a patient-centric approach to asthma management: results of a European Delphi consensus programme |
| https://doi.org/10.1182/blood-2025-6342 | The burden of myeloma treatment routes and locations on patients and families: Insights from a Pan-European survey |
| https://doi.org/10.1182/blood-2025-4569 | Reveal-MM: Retrospective evaluation of variables in early assessment and landmark trends in multiple myeloma – a US claims-based case-control study |
| https://doi.org/10.1016/j.bglo.2025.100056 | Barriers to and facilitators of clinical trial participation in multiple myeloma |
| https://doi.org/10.3389/frhem.2025.1699930 | Myeloma patients’ attitudes and perceived burden of treatment administration routes and locations: insights from a pan-European survey |
| https://doi.org/10.3390/jmahp14010005 | Development of a Performance Measurement Framework for European Health Technology Assessment: Stakeholder-Centric Key Performance Indicators Identified in a Delphi Approach by the European Access Academy |
| https://doi.org/10.1016/j.chest.2025.12.043 | Shaping the Future of Respiratory Care |
| https://doi.org/10.1007/978-3-032-11284-2_18 | European Union: Patient Involvement Model in HTA Under the European HTA Regulation |
| https://doi.org/10.1007/978-3-032-11284-2_30 | The Evolving Role of Patient Organisations in HTA |
| https://doi.org/10.1016/s2665-9913(25)00284-x | Patient partnership model in rare and complex rheumatological conditions: research and beyond in European Reference Network ReCONNET |
| https://doi.org/10.1002/hem3.70320 | Eligibility criteria for clinical trials in AL amyloidosis result in exclusion of nearly half of real‐world patients |
| https://doi.org/10.1016/j.vaccine.2026.128384 | Attitudes toward vaccines and antivirals for viral respiratory infections in a survey of US adults with chronic health conditions |
| https://doi.org/10.1080/13548506.2026.2635752 | Exploring the impact of stigmatization on mental health in persons with liver disease: a scoping review |
| https://doi.org/10.1186/s12939-026-02783-5 | Defining advocacy in public health: a scoping review to inform policy, training, and equity-oriented action |
| https://doi.org/10.1016/j.waojou.2026.101351 | Nature prescription for patients with chronic respiratory diseases |
| https://doi.org/10.1186/s12874-026-02818-z | Privacy rights and improving knowledge are not hierarchical needs: data protection and good epidemiologic standard (DP_GOES) checklist for retrospective observational studies using secondary data |
| https://doi.org/10.3389/falgy.2026.1745834 | EUFOREA summit in Brussels 2025: inspiring the future of allergy and respiratory care |
| https://doi.org/10.1002/hem3.70306 | The European CAR‐T map—Current status and future directions to improve access to CAR T‐cell therapy for hematologic malignancies |
| https://doi.org/10.1007/s40271-026-00809-2 | Putting Patient Voices at the Heart of Healthcare Decisions: The UNIFIED Public-Private Project |