Publications in OpenAlex of which a co-author is affiliated to this organization
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| Title | DOI |
|---|---|
| https://doi.org/10.1111/all.70182 | |
| https://doi.org/10.1111/j.1398-9995.2009.02059.x | GA2LEN (Global Allergy and Asthma European Network) addresses the allergy and asthma ‘epidemic’ |
| https://doi.org/10.1111/j.1398-9995.2004.00720.x | Information provision for allergic consumers – where are we going with food allergen labelling? |
| https://doi.org/10.1186/s40900-015-0004-9 | From tokenism to meaningful engagement: best practices in patient involvement in an EU project |
| https://doi.org/10.1111/j.1398-9995.2008.01653.x | Primary care: the cornerstone of diagnosis of allergic rhinitis |
| https://doi.org/10.1186/s13601-017-0160-0 | Allergen immunotherapy for allergic asthma: a systematic overview of systematic reviews |
| https://doi.org/10.1111/j.1398-9995.2012.02822.x | Prevention and control of childhood asthma and allergy in the |
| https://doi.org/10.1016/s0140-6736(15)60297-5 | Rare diseases and effective treatments: are we delivering? |
| https://doi.org/10.1111/all.13856 | Prioritizing research challenges and funding for allergy and asthma and the need for translational research—The European Strategic Forum on Allergic Diseases |
| https://doi.org/10.1093/ndt/gfw095 | Advances and unmet needs in genetic, basic and clinical science in Alport syndrome: report from the 2015 International Workshop on Alport Syndrome |
| https://doi.org/10.1111/j.1398-9995.2006.01106.x | Working towards healthy air in dwellings in Europe |
| https://doi.org/10.1111/j.1398-9995.2008.01944.x | Pharmacovigilance of drug allergy and hypersensitivity using the ENDA–DAHD database and the GA2LEN platform. The Galenda project |
| https://doi.org/10.1186/s12916-017-0856-y | Late presentation of chronic viral hepatitis for medical care: a consensus definition |
| https://doi.org/10.1136/bmj.k4680 | Respiratory disease mortality in the United Kingdom compared with EU15+ countries in 1985-2015: observational study |
| https://doi.org/10.1186/s13601-019-0242-2 | Vilnius Declaration on chronic respiratory diseases: multisectoral care pathways embedding guided self-management, mHealth and air pollution in chronic respiratory diseases |
| https://doi.org/10.1016/j.leukres.2017.05.019 | Living with the burden of relapse in multiple myeloma from the patient and physician perspective |
| https://doi.org/10.1111/bjd.16093 | Towards global consensus on core outcomes for hidradenitis suppurativa research: an update from the HISTORIC consensus meetings I and II |
| https://doi.org/10.1111/jvh.12493 | Addressing barriers to the prevention, diagnosis and treatment of hepatitis B and C in the face of persisting fiscal constraints in Europe: report from a high level conference |
| https://doi.org/10.3389/fmed.2021.686165 | Patient Preferences for Multiple Myeloma Treatments: A Multinational Qualitative Study |
| https://doi.org/10.2196/28766 | A Road Map for Remote Digital Health Technology for Motor Neuron Disease |
| https://doi.org/10.1111/all.12258 | Improving allergy management in the primary care network - a holistic approach |
| https://doi.org/10.2217/fon-2017-0715 | Insights Into the Hepatocellular Carcinoma Patient Journey: Results of the First Global Quality of Life Survey |
| https://doi.org/10.1183/23120541.00076-2018 | Still Fighting for Breath: a patient survey of the challenges and impact of severe asthma |
| https://doi.org/10.1016/j.jaip.2020.01.059 | Research Priorities in Pediatric Asthma: Results of a Global Survey of Multiple Stakeholder Groups by the Pediatric Asthma in Real Life (PeARL) Think Tank |
| https://doi.org/10.1111/liv.14282 | Securing sustainable funding for viral hepatitis elimination plans |
| https://doi.org/10.1016/j.jval.2022.03.018 | Designing and Implementing Deliberative Processes for Health Technology Assessment: A Good Practices Report of a Joint HTAi/ISPOR Task Force |
| https://doi.org/10.1007/s40271-018-0325-5 | Putting Patients at the Centre of Healthcare: Progress and Challenges for Health Technology Assessments |
| https://doi.org/10.1111/all.12115 | Impact of early diagnosis and control of chronic respiratory diseases on active and healthy ageing |
| https://doi.org/10.1016/j.dld.2019.11.004 | Multidisciplinary management of the nocebo effect in biosimilar-treated IBD patients: Results of a workshop from the NOCE-BIO consensus group |
| https://doi.org/10.1016/j.jhep.2023.07.029 | Uniting to defeat steatotic liver disease: A global mission to promote healthy livers and healthy lives |
| https://doi.org/10.1080/21678421.2020.1788092 | TRICALS: creating a highway toward a cure |
| https://doi.org/10.1111/hex.13207 | Understanding multi‐stakeholder needs, preferences and expectations to define effective practices and processes of patient engagement in medicine development: A mixed‐methods study |
| https://doi.org/10.1007/s40271-021-00554-8 | A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in Adults |
| https://doi.org/10.1186/s13073-016-0376-y | Erratum to: Making sense of big data in health research: towards an EU action plan |
| https://doi.org/10.1186/s13601-020-00321-2 | Digital transformation of health and care to sustain Planetary Health: The MASK proof-of-concept for airway diseases—POLLAR symposium under the auspices of Finland’s Presidency of the EU, 2019 and MACVIA-France, Global Alliance against Chronic Respiratory Diseases (GARD, WH0) demonstration project, Reference Site Collaborative Network of the European Innovation Partnership on Active and Healthy Ageing |
| https://doi.org/10.1111/all.14838 | Management of anaphylaxis due to COVID‐19 vaccines in the elderly |
| https://doi.org/10.1111/jvh.12759 | Strategies to manage hepatitis C virus infection disease burden—Volume 4 |
| https://doi.org/10.4193/rhin19.012 | Patient Advisory Board for Chronic Rhinosinusitis – A EUFOREA initiative |
| https://doi.org/10.1186/s12889-022-13724-6 | LiverScreen project: study protocol for screening for liver fibrosis in the general population in European countries |
| https://doi.org/10.1111/jdv.19269 | First update of the living European guideline ( |
| https://doi.org/10.1016/j.drugpo.2017.05.054 | Restrictions on access to direct-acting antivirals for people who inject drugs: The European Hep-CORE study and the role of patient groups in monitoring national HCV responses |
| https://doi.org/10.1002/jia2.25052 | Hep‐CORE: a cross‐sectional study of the viral hepatitis policy environment reported by patient groups in 25 European countries in 2016 and 2017 |
| https://doi.org/10.1186/s40900-023-00430-9 | Patients as research partners in preference studies: learnings from IMI-PREFER |
| https://doi.org/10.1016/j.jhep.2022.08.027 | MAFLD 2022: An ELPA/ALPA/EASO-ECPO joint statement on disease stigma |
| https://doi.org/10.1016/j.lungcan.2022.08.021 | Development of an updated, standardized, patient-centered outcome set for lung cancer |
| https://doi.org/10.1111/liv.15446 | Securing wider EU commitment to the elimination of hepatitis C virus |
| https://doi.org/10.1038/s41591-023-02265-z | Screening for fibrosis to diagnose liver diseases early: the LIVERSCREEN project |
| https://doi.org/10.1017/s0266462323000375 | Uncertainty management in regulatory and health technology assessment decision-making on drugs: guidance of the HTAi-DIA Working Group |
| https://doi.org/10.1186/s13601-016-0094-y | Allergen immunotherapy for allergic asthma: protocol for a systematic review |
| https://doi.org/10.1016/j.semarthrit.2022.152050 | Development and external validation of prediction models for adverse health outcomes in rheumatoid arthritis: A multinational real-world cohort analysis |
| https://doi.org/10.3390/jcm9082397 | The Hidden Burden of Severe Asthma: From Patient Perspective to New Opportunities for Clinicians |
| https://doi.org/10.1007/s40629-019-0098-y | Atopic eczema score of emotional consequences—a questionnaire to assess emotional consequences of atopic eczema |
| https://doi.org/10.1183/13993003.02107-2022 | Core outcome sets, developed collaboratively with patients, can improve the relevance and comparability of clinical trials |
| https://doi.org/10.1111/dme.15259 | Standardising personalised diabetes care across European health settings: A person‐centred outcome set agreed in a multinational Delphi study |
| https://doi.org/10.1183/13993003.01231-2022 | Identifying and appraising outcome measures for severe asthma: a systematic review |
| https://doi.org/10.1002/clt2.70002 | GA2LEN ANACARE consensus statement: Potential of omalizumab in food allergy management |
| https://doi.org/10.1080/15412555.2020.1788526 | Daily Impact of COPD in Younger and Older Adults: Global Online Survey Results from over 1,300 Patients |
| https://doi.org/10.1111/cob.12489 | The development of a core outcomes set for self‐management interventions for patients living with obesity |
| https://doi.org/10.1111/all.15857 | Addressing adverse synergies between chemical and biological pollutants at schools—The ‘ |
| https://doi.org/10.1177/2168479015599810 | Innovation of Medical Products: The Evolution of Regulatory Science, Research, and Education |
| https://doi.org/10.3389/fpubh.2022.842462 | Preferences Regarding Self-Management Intervention Outcomes of Dutch Chronically Ill Patients With Limited Health Literacy |
| https://doi.org/10.1016/j.rmed.2023.107361 | EUFOREA pocket guide on the diagnosis and management of asthma: An educational and practical tool for general practitioners, non-respiratory physicians, paramedics and patients |
| https://doi.org/10.1002/cpt.1121 | Medicines Adaptive Pathways to Patients: Why, When, and How to Engage? |
| https://doi.org/10.1007/s43441-021-00313-9 | Optimising Multi-stakeholder Practices in Patient Engagement: A Gap Analysis to Enable Focused Evolution of Patient Engagement in the Development and Lifecycle Management of Medicines |
| https://doi.org/10.12688/openreseurope.15276.1 | Developing the next generation of renewable energy technologies: an overview of low-TRL EU-funded research projects |
| https://doi.org/10.1371/journal.pgph.0000841 | Monitoring progress towards elimination of hepatitis B and C in the EU/EEA |
| https://doi.org/10.1111/all.15723 | Adherence and persistence in allergen immunotherapy (APAIT): A reporting checklist for retrospective studies |
| https://doi.org/10.1002/clt2.12299 | A concept for integrated care pathways for atopic dermatitis—A GA2LEN ADCARE initiative |
| https://doi.org/10.1007/s12325-023-02724-6 | A Patient Charter for Chronic Urticaria |
| https://doi.org/10.1136/bmjopen-2023-079309 | Personalised human albumin in patients with cirrhosis and ascites: design and rationale for the ALB-TRIAL - a randomised clinical biomarker validation trial |
| https://doi.org/10.23736/s2784-8671.24.07664-3 | Italian S3-Guideline on the treatment of Atopic Eczema - Part 1: Systemic therapy, adapted from EuroGuiDerm by the Italian Society of Dermatology and STD (SIDEMAST), the Italian Association of Hospital Dermatologists (ADOI) and the Italian Society of Allergological and Environmental Dermatology (SIDAPA) |
| https://doi.org/10.1186/s12961-024-01154-2 | Navigating the path towards successful implementation of the EU HTA Regulation: key takeaways from the 2023 Spring Convention of the European Access Academy |
| https://doi.org/10.1016/j.clml.2022.12.003 | Rates of Influenza and Pneumococcal Vaccination and Correlation With Survival in Multiple Myeloma Patients |
| https://doi.org/10.3390/cancers15245764 | Guidelines for the Use and Reporting of Patient-Reported Outcomes in Multiple Myeloma Clinical Trials |
| https://doi.org/10.1038/s41598-023-49424-3 | The preferences of people with amyotrophic lateral sclerosis on riluzole treatment in Europe |
| https://doi.org/10.1080/14786451.2024.2385632 | Enhancing smart readiness of buildings: bridging the knowledge gap to European citizens |
| https://doi.org/10.1016/j.aohep.2024.101741 | A social media listening study of patients’ experiences relating to metabolic dysfunction-associated steatotic liver disease: The LISTEN-MASLD study |
| https://doi.org/10.1007/978-981-10-4068-9_35 | Role of Patient Organisations |
| https://doi.org/10.4193/rhin24.510 | Pocket guide: biologics in upper and lower airways in adults |
| https://doi.org/10.1038/s41746-025-01697-w | Classification grid and evidence matrix for evaluating digital medical devices under the European union landscape |
| https://doi.org/10.1016/j.clml.2024.04.004 | Changes in income and employment after diagnosis among patients with multiple myeloma in The Netherlands |
| https://doi.org/10.3390/jmahp13020027 | Enhancing Patient Engagement in HTA: Using Consensus Research to Overcome PICO Scoping Challenges Under the EU HTAR |
| https://doi.org/10.1016/j.waojou.2025.101123 | Food allergy severity across the world: A World Allergy Organization international survey |
| https://doi.org/10.1007/s00277-024-06129-5 | Patient-reported outcome domains in multiple myeloma randomized controlled trials and association with survival outcomes |
| https://doi.org/10.3390/jmahp13010006 | Avoiding Error and Finding the Right Balance in European Health Technology Assessments: Insights Generated by the European Access Academy |
| https://doi.org/10.1080/02770903.2025.2466183 | Patient perspectives on the use of oral corticosteroids in asthma |
| https://doi.org/10.1186/s40249-025-01288-7 | Best practices for engaging with affected communities: chronic hepatitis B as a case study |
| https://doi.org/10.2147/por.s487342 | Expert Perspectives on Next Generation Health Guidelines: How to Integrate RWE in EBM |
| https://doi.org/10.1016/j.pec.2025.109363 | “About the patient, not for the patient”: A qualitative study on medical reports in hepatology |
| https://doi.org/10.1016/j.ejca.2025.116064 | The use of EORTC QLQ-C30 Summary Score in cancer research and its performance as compared with the EORTC QLQ-C30 Global Health/Quality of Life scale: A systematic review and comparative analysis of effect sizes |
| https://doi.org/10.3389/falgy.2025.1540499 | Raising the bar in respiratory care by EUFOREA: report of the European Union Parliament Symposium, April 2024 |
| https://doi.org/10.2147/copd.s503726 | Single-Inhaler Triple Therapy in Primary Care Across Europe: Expert Panel Consensus on the Consequences of Payer-Driven Access Rules and Call to Action |
| https://doi.org/10.1093/ndt/gfaf161 | The unmet need of electrolyte supplements |
| https://doi.org/10.1007/s13555-025-01587-9 | Patient and Caregiver Perceptions on Education and Treatment Needs in Atopic Dermatitis from an International Survey |
| https://doi.org/10.1186/s12911-025-03229-8 | Patients and healthcare professionals’ perspectives on the implementation of shared decision making in multiple myeloma: a multinational qualitative study |
| https://doi.org/10.1080/21645515.2025.2600657 | The Viral Hepatitis Prevention Board (VHPB) supports the continued recommendation for universal hepatitis B vaccination of all newborns within 24 hours of birth |
| https://doi.org/10.1111/j.1398-9995.2005.00868.x | A framework for measuring costs to society of IgE‐mediated food allergy |
| https://doi.org/10.1111/j.1398-9995.2006.01304.x | The limitations of severe asthma: the results of a European survey |
| https://doi.org/10.1371/journal.pone.0247522 | Self-management interventions for adults living with Chronic Obstructive Pulmonary Disease (COPD): The development of a Core Outcome Set for COMPAR-EU project |
| https://doi.org/10.1182/blood-2019-125749 | Real-World (RW) Multiple Myeloma (MM) Patients (Pts) Remain Under-Represented in Clinical Trials Based on Standard Laboratory Parameters and Baseline Characteristics: Analysis of over 3,000 Pts from the Insight MM Global, Prospective, Observational Study |