Epilepsy Action

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https://doi.org/10.1080/09540962.2014.887514 The EU's public finance crisis: causes, consequences and cure
https://doi.org/10.1016/s1059-1311(02)00265-0 Perspectives on epilepsy in people with intellectual disabilities: comparison of family carer, staff carer and clinician score profiles on the Glasgow Epilepsy Outcome Scale (GEOS)
https://doi.org/10.1111/ane.12186 How long shall we record electroencephalography?
https://doi.org/10.3310/hta22100 Training nurses in a competency framework to support adults with epilepsy and intellectual disability: the EpAID cluster RCT
https://doi.org/10.1016/j.ejmg.2021.104246 Expansion of the CCDC22 associated Ritscher-Schinzel/3C syndrome and review of the literature: Should the minimal diagnostic criteria be revised?
https://doi.org/10.1016/j.yebeh.2021.108258 The impact of SARS-CoV-2 vaccination in Dravet syndrome: A UK survey
https://doi.org/10.1016/j.gim.2023.100894 A new neurodevelopmental disorder linked to heterozygous variants in UNC79
https://doi.org/10.1684/epd.2019.1061 Current treatment options for Encephalopathy related to Status Epilepticus during slow Sleep
https://doi.org/10.1212/wnl.0000000000010470 Absence-to-bilateral-tonic-clonic seizure
https://doi.org/10.1002/hbm.26118 Mapping Interictal activity in epilepsy using a hidden Markov model: A magnetoencephalography study
https://doi.org/10.1002/epi4.12623 Effect of fenfluramine on seizures and comorbidities in SCN8A‐developmental and epileptic encephalopathy: A case series
https://doi.org/10.1002/ana.26662 KCNT2Related Disorders: Phenotypes, Functional, and Pharmacological Properties
https://doi.org/10.1111/jocn.16582 Determining the role and responsibilities of the community epilepsy nurse in the management of epilepsy
https://doi.org/10.1111/dmcn.15142 Pyridoxine or pyridoxal‐5‐phosphate treatment for seizures in glycosylphosphatidylinositol deficiency: A cohort study
https://doi.org/10.1016/j.seizure.2015.05.009 Epilepsy service provision in the National Health Service in England in 2012
https://doi.org/10.1016/j.eplepsyres.2020.106547 Risk factors of paradoxical reactions to anti-seizure medication in genetic generalized epilepsy
https://doi.org/10.1371/journal.pntd.0010675 Community-level prevalence of epilepsy and of neurocysticercosis among people with epilepsy in the Balaka district of Malawi: A cross-sectional study
https://doi.org/10.1111/epi.17991 Global modified‐Delphi consensus on comorbidities and prognosis of SCN8A‐related epilepsy and/or neurodevelopmental disorders
https://doi.org/10.1016/j.braindev.2012.06.011 Role of ESSENCE for preschool children with neurodevelopmental disorders
https://doi.org/10.1111/epi.17358 The de novo GABRA4 p.Thr300Ile variant found in a patient with early‐onset intractable epilepsy and neurodevelopmental abnormalities displays gain‐of‐function traits
https://doi.org/10.1016/j.ejmg.2022.104624 Expanding the pre- and postnatal phenotype of WASHC5 and CCDC22 -related Ritscher-Schinzel syndromes
https://doi.org/10.1038/s41582-022-00756-0 From precision diagnosis to precision treatment in epilepsy
https://doi.org/10.1111/epi.17780 Solving the unsolved genetic epilepsies: Current and future perspectives
https://doi.org/10.1111/epi.17976 Development of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Infants, Children, and Adolescents with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus Recommendations
https://doi.org/10.1111/ene.15168 Web‐based decision support system for patient‐tailored selection of antiseizure medication in adolescents and adults: An external validation study
https://doi.org/10.1097/md.0000000000023620 Efficacy and safety of intravenous thrombolysis with alteplase for treating acute ischemic stroke at different time windows
https://doi.org/10.1192/bjo.2024.749 Evidencing the challenges of care delivery for people with intellectual disability and epilepsy in England by using the Step Together toolkit
https://doi.org/10.1111/epi.17411 Time to exceed pre‐randomization monthly seizure count for perampanel in participants with primary generalized tonic–clonic seizures: A potential clinical end point
https://doi.org/10.1111/epi.14001 Return to driving after a diagnosis of epilepsy: A prospective registry study
https://doi.org/10.2196/29509 Key Drivers and Facilitators of the Choice to Use mHealth Technology in People With Neurological Conditions: Observational Study
https://doi.org/10.1016/j.seizure.2024.12.008 Top Ten epilepsy research priorities: A UK priority setting partnership
https://doi.org/10.1016/j.yebeh.2023.109296 Awareness of social care needs in people with epilepsy and intellectual disability
https://doi.org/10.1111/epi.18310 Amitriptyline use in individuals with KCNQ2/3 gain‐of‐function variants: A retrospective cohort study
https://doi.org/10.1016/j.ebiom.2025.105648 The severity of SLC1A2-associated neurodevelopmental disorders correlates with transporter dysfunction
https://doi.org/10.1016/j.clineuro.2020.105963 Course and impact of sleep disturbance in newly diagnosed epilepsy: A prospective registry study
https://doi.org/10.1111/cge.14353 POU3F3 ‐related disorder: Defining the phenotype and expanding the molecular spectrum
https://doi.org/10.1016/j.seizure.2023.08.010 National audit of pathways in epileptic seizure referrals (NAPIER): A national, multicentre audit of first seizure clinics throughout the UK and Ireland
https://doi.org/10.1002/epd2.20220 ATP1A2‐related epileptic encephalopathy and movement disorder: Clinical features of three novel patients
https://doi.org/10.1016/j.pediatrneurol.2024.06.001 Epilepsy as a Novel Phenotype of BPTF-Related Disorders
https://doi.org/10.1016/j.gim.2024.101348 Expanding the phenotype and genotype spectrum of TAOK1 neurodevelopmental disorder and delineating TAOK2 neurodevelopmental disorder
https://doi.org/10.1002/epi4.12874 Status of epilepsy care delivery and referral in clinics, hospitals, and epilepsy centers in Japan: A nationwide survey
https://doi.org/10.1111/cge.14577 Unraveling GRIA1 neurodevelopmental disorders: Lessons learned from the p.(Ala636Thr) variant
https://doi.org/10.1016/j.clinph.2025.2110777 The GREENBEAN checklist for reporting studies evaluating the effectiveness of EEG-based biomarkers
https://doi.org/10.1016/j.yebeh.2023.109611 ‘Knowledge exchange’ workshops to optimise development of a risk prediction tool to assist conveyance decisions for suspected seizures – Part of the Risk of ADverse Outcomes after a Suspected Seizure (RADOSS) project
https://doi.org/10.1093/brain/awaf119 SNAP25 variant I67N: synaptic phenotypes, drug response and proteome changes in human neurons
https://doi.org/10.1007/s10072-025-08174-y Cenobamate as add-on treatment in ultra-refractory focal epilepsy: Real-world results from The Danish Epilepsy Centre, Dianalund, Denmark
https://doi.org/10.1093/brain/awaf213 The genetic and phenotypic spectrum of GABRB1 -related disorders
https://doi.org/10.1684/epd.2021.1271 Use of fitness trackers to identify and document epileptic seizures
https://doi.org/10.1016/j.seizure.2025.08.014 Programming in Vagus nerve stimulation therapy: Consensus from a Nordic Delphi Panel
https://doi.org/10.1038/s41467-025-67576-w Biallelic variants in CELSR1 cause brain malformations, neurodevelopmental disorders and epilepsy in humans
https://doi.org/10.1002/ajmg.a.32823 9q subtelomeric deletion syndrome with diaphragmatic hernia
https://doi.org/10.1016/j.yebeh.2024.110164 Physical exercise habits in people with epilepsy: A survey from Brazilian population
https://doi.org/10.1016/j.pediatrneurol.2025.06.010 Cyclical Vomiting Syndrome in Individuals With BPTF Haploinsufficiency
https://doi.org/10.1016/j.seizure.2025.06.017 Pediatric refractory epilepsy related to tuberous sclerosis complex: A retrospective-cohort study of diagnosis and treatment
https://doi.org/10.1016/j.clinph.2025.2110828 Home ultra-long EEG monitoring in Lennox-Gastaut syndrome by subscalp EEG: opportunities and challenges
https://doi.org/10.1212/wnl.0000000000213868 Development and Adaptive Function in Individuals With SCN2A -Related Disorders
https://doi.org/10.1111/epi.18672 Syndromic and etiological classification predicts seizure freedom in childhood and youth onset epilepsy: A population‐based study from the Norwegian Mother, Father, and Child Cohort Study
https://doi.org/10.1111/epi.18680 Clobazam versus corticosteroid for developmental and epileptic encephalopathy with spike–wave activation in sleep ((D) EESWAS ): Results of a multicenter observational study
https://doi.org/10.1038/s41598-025-23377-1 Paternal valproate use and impact of shared genetic susceptibility on child neurodevelopment
https://doi.org/10.1111/epi.18702 Visually‐provoked seizures: Consensus of the Epilepsy Foundation Working Group
https://doi.org/10.1177/15357597251406694 Annual Course / From Then to Now: The Evolving Spectrum of Epilepsy Care
https://doi.org/10.1002/epi.70080 L‐Relationship between uncertainty and average seizure frequency in clinical trials of antiseizure medications
https://doi.org/10.1002/epi.70100 Mechanisms of SCN2A loss of function do not predict presence or phenotype of epilepsy
https://doi.org/10.1002/epi.70167 Response: Lenses protecting against photosensitivity violate international driving regulations
https://doi.org/10.2165/00003495-200060010-00003 Newer Anticonvulsants
https://doi.org/10.1053/seiz.1999.0274 Gender difference in management of epilepsy—what women are hearing
https://doi.org/10.1111/j.0013-9580.2004.34003.x Resective Surgery for Intractable Focal Epilepsy in Patients with Low IQ: Predictors for Seizure Control and Outcome with Respect to Seizures and Neuropsychological and Psychosocial Functioning
Serum prolactin levels are elevated also after pseudo-epileptic seizures.
https://doi.org/10.1017/s0012162201002511 High incidence of language disorder in children with focal epilepsies
https://doi.org/10.1016/s1059-1311(96)80107-5 Perceived self-control of seizures in young people with epilepsy
https://doi.org/10.1016/j.yebeh.2006.06.018 Psychiatric symptoms in adolescents with epilepsy in junior high school in Norway: A population survey
https://doi.org/10.1016/j.yebeh.2009.03.006 Health, wealth, and culture as predominant factors in psychosocial morbidity
https://doi.org/10.5694/j.1326-5377.2010.tb03535.x Driving to distraction — certification of fitness to drive with epilepsy
https://doi.org/10.1097/01.wnr.0000230517.93714.f6 Source analysis of epileptic discharges using multiple signal classification analysis
https://doi.org/10.1093/ejo/cju064 Influence of craniofacial and upper spine morphology on mandibular advancement device treatment outcome in patients with obstructive sleep apnoea: a pilot study
https://doi.org/10.1111/epi.13724 Long‐term white matter tract reorganization following prolonged febrile seizures
https://doi.org/10.1080/13501763.2014.897363 Integrating rules, disintegrating markets: the end of national discretion in European banking?
https://doi.org/10.1159/000448367 Exome Sequencing Fails to Identify the Genetic Cause of Aicardi Syndrome
https://doi.org/10.1002/ajmg.a.61859 Expanding the phenotype of Wiedemann‐Steiner syndrome: Craniovertebral junction anomalies
https://doi.org/10.1038/s41436-018-0325-9 Correction: The landscape of epilepsy-related GATOR1 variants
https://doi.org/10.1002/epi4.12483 Intracranial monitoring contributes to seizure freedom for temporal lobectomy patients with nonconcordant preoperative data
https://doi.org/10.1111/epi.17249 Lack of clinically relevant differences in safety and pharmacokinetics after second‐dose administration of intranasal diazepam within 4 h for acute treatment of seizure clusters: A population analysis
https://doi.org/10.1111/jir.12679 The impact of an epilepsy nurse competency framework on the costs of supporting adults with epilepsy and intellectual disability: findings from the EpAID study
https://doi.org/10.1002/epi4.13093 Epilepsy care pathway: The Finnish model
https://doi.org/10.1111/j.1600-0404.1987.tb05459.x Incidence of seizures during pregnancy, labor and puerperium in epileptic women: a prospective study
https://doi.org/10.1177/0959353592021003 Should `Premenstrual Syndrome' be Called a Psychiatric Abnormality?
https://doi.org/10.1046/j.1528-1157.2001.254001.x Adverse Event Monitoring in Lamotrigine Patients: A Pharmacoepidemiologic Study in the United Kingdom
https://doi.org/10.1016/s1059-1311(05)80060-3 Epilepsy and employment—employers' attitudes
https://doi.org/10.1046/j.1528-1157.2001.0420081043.x Development and Validation of the Glasgow Epilepsy Outcome Scale (GEOS): A New Instrument for Measuring Concerns about Epilepsy in People with Mental Retardation
https://doi.org/10.1016/j.seizure.2005.04.008 Seizure-related injuries in a group of young people with epilepsy wearing protective helmets: Incidence, types and circumstances
https://doi.org/10.1046/j.1600-0404.2003.00249.x Predictors of seizure outcome after temporal lobectomy for intractable epilepsy
https://doi.org/10.1016/0738-3991(95)00726-g Patient education: lessons from epilepsy
https://doi.org/10.1016/0896-6974(93)90005-u The personal impact of seizures: Correlations with seizure frequency, employment, cost of medical care, and satisfaction with physician care
https://doi.org/10.2174/1381612823666170823111712 Management of Antiepileptic Treatment After Epilepsy Surgery - Practices and Problems
https://doi.org/10.1212/wnl.0000000000011237 Basal Ganglia Dysmorphism in Patients With Aicardi Syndrome
https://doi.org/10.1186/s13063-016-1429-7 Improving outcomes in adults with epilepsy and intellectual disability (EpAID) using a nurse-led intervention: study protocol for a cluster randomised controlled trial
https://doi.org/10.1002/14651858.cd013847 Prognosis of adults and children following a first unprovoked seizure
https://doi.org/10.1002/ana.24109 Can febrile status cause hippocampal sclerosis?
https://doi.org/10.1002/ajmg.a.62753 Novel truncating variants in FGD1 detected in two Danish families with Aarskog–Scott syndrome and myopathic features
https://doi.org/10.1212/wnl.0000000000012441 Gerstmann Syndrome Deconstructed by Cortical Stimulation